Epidermolysis Bullosa News Home
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
About Us - Epidermolysis Bullosa News
Epidermolysis Bullosa News is a digital platform intended to provide the epidermolysis bullosa (EB) community with the most recent news and information on EB, as well as first-hand community perspectives from our patient and caregiver columnists.
CRISPR Gene Editing May Restore DEB's Missing Collagen
Nov 18, 2022 · Getting gene editing based on CRISPR, a kind of molecular scissors, delivered directly into cells may help restore the production of type VII collagen, the protein that’s missing in patients with dystrophic epidermolysis bullosa (DEB), a mouse study found.
EBS Phase 2 Trial Validates New Investigator’s Global Assessment …
Jan 16, 2018 · Data from a Phase 2 trial validated a new five-point Investigator’s Global Assessment (IGA) scale for the clinical evaluation of patients with epidermolysis bullosa simplex (EBS), the scale’s developer, Castle Creek Pharmaceuticals (CCP), announced.
Filsuvez (birch triterpenes) for epidermolysis bullosa
Jan 2, 2024 · What is Filsuvez for epidermolysis bullosa? Filsuvez (birch triterpenes), previously known as Oleogel-S10 or AP101, is a topical gel that’s approved to help promote wound healing in people with dystrophic epidermolysis bullosa (DEB) or junctional epidermolysis bullosa (JEB).
What Is Epidermolysis Bullosa? – Epidermolysis Bullosa News
Jul 13, 2021 · Epidermolysis bullosa (EB) describes a group of rare skin disorders that lead to fragile skin that easily blisters and tears. Blistering may also be found within the body, like blistering of the mucous membranes that surround organs and orifices (including the mouth).
Living with Epidermolysis Bullosa – Epidermolysis Bullosa News
As an inherited disorder with no cure, epidermolysis bullosa (EB) is a lifelong condition. Although its severity does vary from person to person, every child born with EB will face challenges that affect every aspect of life, including the family’s life.
First patients enrolled in trial of RLF-TD011 wound spray for EB
Feb 17, 2023 · A proof-of-concept trial evaluating the effects of Relief Therapeutics’ antimicrobial wound spray RLF-TD011 — formerly known as APR-TD011 — in people with epidermolysis bullosa (EB) has enrolled its first three patients, the company announced.
Gene-editing therapy corrects defects in skin cells from EBS boy
Jan 26, 2024 · A gene-editing therapy to inactivate a harmful mutated copy of the KRT14 gene reversed defects in skin cells taken from a child with epidermolysis bullosa simplex (EBS), according to recent research.
debra of America launches registry to better understand EB
Oct 13, 2023 · A new registry for those with epidermolysis bullosa (EB) and their families, from the patient advocacy organization debra of America, is aiming to help both them and scientists to better understand this group of rare skin disorders.